What is EU-ProPER?

EU-ProPER is a study that looks into the effects of PCa on the relationship, intimacy, sexuality, and social life. Available in 17 languages, a 20-minute online survey comprised of 80 questions and the SF-12v2® Health Survey was distributed in the EUomo member network. The survey collected 1,135 valid responses from 9 October to 31 December 2023.

The findings

Out of all the respondents, 46% reported that PCa has influenced their relationships. About 48% observed that their partners are not the same after PCa treatment(s). Around 32% reported effects on their social and family life and 19% reported reduced participation in own activities.

Sixty-seven percent disclosed a loss in intimacy. Only 27% of PCa partners are satisfied with their sex life. Around 73% declared that their sex life was better before the PCa diagnosis. About 32% reported frustration from their sex life. On communicating to their partners how they feel about their sex life, 29% disclosed they find it difficult.

Around 39% reported that incontinence is still taboo and has implications on their sex and social life (i.e. “Nobody apart from me is aware of my partner’s incontinence”). About 16% reported a need for mental support from a mental health professional.

Sixty-five percent were involved in the decision-making process regarding treatment. However, 16% were not aware of the consequences of the PCa treatment(s). About 20% received information about sexuality from healthcare providers (HCPs) and 52% searched for the information themselves.

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